Community members gather to support Bleeding Disorders Awareness Month in College Station.
College Station has officially declared March as National Bleeding Disorders Awareness Month in partnership with the Lone Star Bleeding Disorders Foundation. This initiative aims to raise awareness and support for individuals living with bleeding disorders like hemophilia A. Local advocates and community members are coming together to educate and promote understanding while highlighting the challenges faced by those affected. Through various events and fundraisers, the foundation seeks to build a stronger, more caring community around the issues of access to care and support for families dealing with these conditions.
In a heartwarming move, the city of College Station recently declared March as National Bleeding Disorders Awareness Month, joining hands with the Lone Star Bleeding Disorders Foundation (LSBDF) to shine a light on the challenges faced by individuals living with bleeding disorders. This initiative is much more than just a cute proclamation; it’s a way to show support and celebrate the resilience of those affected by conditions like hemophilia A.
One of the driving forces behind this awareness month is Kyle Compton, a Texas A&M student bravely living with severe hemophilia A. Kyle has faced numerous hurdles, particularly in how the public views his condition. Instead of focusing solely on what he can’t do, he encourages those around him to recognize the importance of support and awareness.
With bleeding disorders, it’s not just a matter of minor injuries; they can lead to severe health complications due to improper blood clotting. Often, people are unaware of the everyday realities faced by those dealing with these conditions.
The LSBDF plays a crucial role in providing education, advocacy, and medical assistance for those affected by bleeding disorders. The organization helps families understand their unique situations, offering guidance on a case-by-case basis. The mission is clear: to create a solid community that champions the rights and health of individuals with bleeding disorders.
Riley Ball, an advocate working with LSBDF, mentioned that the foundation aims to unite people who share the struggle of living with these conditions. The more people come together, the stronger the voice against bleeding disorders becomes.
The proclamation issued by College Station also signifies a significant step toward ensuring better access to necessary care and resources. Raising awareness in local communities is essential, according to Kyle, who highlights the importance of his friends and neighbors understanding hemophilia’s impact on his life.
The LSBDF is committed to improving the quality of life for South Texans battling bleeding disorders, including hemophilia and Von Willebrand Disease. It’s no small feat—treatment costs for hemophilia can range wildly from $60,000 to $260,000 annually, leaving many families in financial distress.
Adian Hogue, another Texas A&M student and advocate for LSBDF, has pointed out the physical challenges individuals with bleeding disorders face regularly. However, this community is not giving up. The foundation focuses on increasing access to necessary treatments for its members, because every little bit helps improve lives.
Since its founding in 1969, LSBDF has been dedicated to making sure individuals and families dealing with bleeding disorders feel visible and valued. They offer a range of services, including support for research, advocacy, and awareness-raising efforts.
To engage the community and raise funds, LSBDF organizes fantastic events like the annual Unite Walk and the Texas Bleeding Disorders Conference. These gatherings not only help spread the word but also create an empowering environment for individuals facing similar challenges.
To wrap up National Bleeding Disorders Month, LSBDF will host a lively crawfish boil fundraiser on March 30 in Cypress. It promises a day of delicious food and great company, serving as both a fundraiser and a platform for raising awareness about bleeding disorders.
To everyone in College Station and beyond, keep your eyes peeled for local events and initiatives that promote understanding and support for those living with bleeding disorders. Together, we can build a more inclusive and informed community!
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